上海市嘉定区慢性乙型病毒性肝炎病人照顾者家庭负担调查分析

Family Burden Surveys on the Family Caregivers of Patients with Chronic Hepatitis B in Jiading District of Shanghai

目的了解嘉定区慢性乙性病毒性肝炎病人家庭负担的状况及其影响因素。方法利用疾病家庭负担量表对嘉定区慢性乙肝病人及其照顾者进行入户问卷调查。结果 223例病人中男性149例(66.8%),女性74例(33.2%);慢性肝炎192例(86.1%),合并肝硬化23例(10.3%),肝癌8例(3.6%);86.1%的家庭主要照顾者认为存在不同程度的照顾负担,经济负担负担率最高,达79.4%。多因素分析发现病人年龄、文化程度、治疗方式以及生存质量是其影响因素。结论慢性乙肝病人家庭负担普遍存在,应根据家庭负担的状况及其影响因素,制定相应的政策和措施来减轻其家庭负担。

OBJECTIVE To know the Family Burden factors and its factors on the family caregivers of patients with chronic Hepatitis B in Jiading District of Shanghai. METHODS The Family Burden Scale of Disease was used to investigate the family caregivers and the patients with chronic hepatitis B. RESULTS In 223 patients, 149 （66.8%） cases were male, 74 （33.2%） female; and 192（86.1%） cases were chronic Hepatitis B. 23（10.3%） patients complicated with liver cirrhosis, 8（3.6%） liver cancer. 86.1% of family caregivers perceived that there is different degree of family burden and economic burden were up to 79.4%. Multi factor analysis showed that the education level and age of patients, treatment and quality of life were its influencing factors. CONCLUSION The family burden on the family caregivers of patients with chronic hepatitis B were widespread. Based on the family burden status and its factors, it should formulate corresponding policies and measures to reduce the family burden.