系统性红斑狼疮女性患者婚育现状分析

An analysis of the existing concept of marriage and fertility among female patients with systemic lupus erythematosus （SLE）

目的：了解系统性红斑狼疮女性患者婚育观的认知及需求情况现状,为制定针对性的健康教育方案提供一定的依据。方法以整群抽样方式,采用自制问卷对196例系统性红斑狼疮女性患者进行婚育观的认知及需求调查,并分析影响因素。结果本组196例患者中,表明不同文化程度及不同年龄段的患者在认为患SLE疾病后是否能结婚的认知方面比较差异均无统计学意义（ P＞0.05）,有32.65%的患者认为患该病后不能结婚；不同文化程度及不同年龄段的患者在认为患SLE疾病后是否能生育的认知方面比较差异均有统计学意义（ P＜0.05）,53.56%的患者认为患病后不可以生育。需求方式中,护士讲解需求率达82.65%,其次是发放书面宣传材料54.08%。结论 SLE患者缺乏正确的婚育观和正确妊娠的信息,医务人员有必要对系统性红斑狼疮女性患者进行婚育知识方面的健康教育,以改善其婚育及生活质量。

Objective To study the existing concept of marriage and fertility among female patients with sys-temic lupus erythematosus （ SLE） , in order to provide evidence for the solution of health education. Methods A ques-tionnaire was applied for 196 female patients with SLE, to analyze the cognition and demand of marriage value and eval-uate influencing factors, by cluster random sampling. Results In the 196 cases, for the cognition about whether or not getting married, there was no significant difference （P〉0. 05） between the patients in different education levels and age groups. Approximately 32. 65% of patients believed that it was unable to get married with SLE. For the concept about whether able to procreate, it demonstrated significant difference （P〈0. 05） between the patients in different education levels and age groups. About 53. 56% of patients believed that it was unable to procreate. For the solution of health edu-cation, nurse explanations were chosen by 82. 65% of, patientsfollowed by writing materials, with 54. 08%. Conclusions It is essential to provide health education about marriage and fertility for patients with SLE, as to improve the living quality for them.