以家庭为中心的教育干预对活动性癫痫患儿服药依从性及健康状况的影响

Effects of family-centered educational intervention on adolescents with active epilepsy

目的评价以家庭为中心的教育干预对活动性癫痫患儿有关疾病的知识和态度、服药依从性与躯体健康状况的干预效果。方法便利选取北京市某三级甲等医院70例住院癫痫患儿。实验组由合作小组成员对患儿和父母进行6个月以家庭为中心的教育干预;对照组接受病房常规治疗和护理。分别在干预前、出院后3个月和6个月,评估患儿的知识和态度、服药依从性和躯体健康状况。结果实验组患儿在出院后3个月和6个月的知识掌握情况均好于对照组(t=-2.765,P=0.008;t=-2.367,P=0.022);干预后两组患儿对疾病的态度得分差异没有统计学意义(P>0.05);实验组患儿出院后6个月服药依从性优于对照组(t=-2.111,P=0.040);实验组患儿6个月后的脑电图明显改善,且优于对照组(χ2=9.746,P=0.002)。结论以家庭为中心的教育干预可以有效地提高患儿的疾病知识水平以及服药依从性;改善患儿躯体健康状况,且远期效果相对更明显;但对改善患儿疾病的态度方面无明显作用。

Objective To evaluate the effectiveness of family-centered educational intervention on disease-related knowledge and attitude,medication compliance and physical health status of adolescents. Methods A total of 70 epileptic adolescents were selected from April to November 2012 in a tertiary hospital in Beijing. The intervention group was given family-centered educational intervention,while the control group was given conventional treatment and care in ward for 6 months. The knowledge level and attitude,medication compliance and physical health status of adolescents were evaluated at discharge and 3 months,6 months after discharge. Results The knowledge level of adolescents in the intervention group was significantly higher than that in the control group（t=-2.765,P=0.008;t=-2.367, P=0.022）; for adolescents＇ attitude toward the disease,there was no significant difference between two groups（P〉0.05）. The medication compliance of adolescents in the intervention group was better than that in the control group at 6 months after discharge（t=-2.111,P=-0.040）. The results of electroencephalograph in the intervention group were significantly better than that in the control group at 6 months after discharge（χ^2=9.746,P=0.002）. Conclusion The family-centered educational intervention can improve the knowledge level and medication compliance of adolescents effectively and play a role in promoting the adolescents＇ physical health. There is no significant effect on the attitude of adolescents toward epilepsy.