南京市肺癌患者主要照顾者照顾负担研究

Studying on the care-giving burden on primary caregivers of patients with lung cancer in Nanjing City

目的:了解肺癌患者主要照顾者的照顾负担。方法:简单随机抽取一家三甲医院,以该院所有肺癌患者及其主要照顾者为调查对象。了解患者的照顾需求,考察主要照顾者的时间与经济负担、替换患者家庭角色负担、工作受限负担、身体健康负担。结果:主要照顾者以配偶为主,时间和经济负担沉重,主要照顾者和其他照顾者在代替患者不同家庭角色方面存在差异。24.9%的主要照顾者过去12个月内因照护任务而存在误工现象。25.9%的主要照顾者过去6个月看过门诊。结论:肺癌患者主要照顾者照顾负担沉重,应建立"医院-社区-家庭"整体照护模式,建立社会支持网络,同时开展专业的居家护理服务。

Objective To evaluate the care-giving burden on primary caregivers of patients with lung cancer. Methods A grade three and first-class hospital was selected by convenience sampling method,in which all the inpatients with lung cancer and their caregivers Were surveyed in the caregivers＇ burden on spending time and economy, replacing patients＇ family role, restricted work and physical health. Results Most of the patients＇ primary caregivers were their spouses, who suffered heavier burden on spending time and economy. There had differences of replacing patients＇ family role among primary and other caregivers. 24.9% of the pri- mary caregivers had their job delayed to take care of patients in the past 12 months. And 25.9% of them received outpatient treat- ment in the past 6 months. Conclusion The primary caregivers of patients with lung cancer suffered heavy burden. It is suggested to develop ＂hospital-community-family＂ integrated care model, social support system and professional residential care.