走出孤岛:医患共同对抗糖尿病社会成见

Out of the isolated island:Doctors and patients fighting diabetes stigma together

目的研究ADA和糖尿病患者伊娃·萨克斯尔及家人共同对抗糖尿病社会成见的历史。方法收集利用上海档案馆馆藏档案资料、专业期刊及大众传媒相关文献、音视频资料,通过文献学方法进行医学史研究。结果获得了糖尿病患者伊娃·萨克斯尔的生平史料,了解了二战后ADA通过媒体宣传来改善社会对糖尿病患者歧视过程中患者发挥的作用。结论通过患者、家庭、医生、医学组织的协同作用可以更好地对抗糖尿病社会成见,提高患者的生活质量。

Objective To study the history of how the American Diabetes Association（ADA） fought along side with the diabetic patient Eva Saxl and her family against the stigma towards diabetes.Methods By collecting and analyzing the archives in Shanghai Archive Center,relevant essays and articles in medical journals and mess media,audio and visual resources,the authors tried to establish a case study of history of medicine using philological method.Results The historical materials of Eva Saxl＇ s life have been collected.How she helped the ADA to reduce discrimination against diabetics using media publicity has been studied.Conclusion The collective work of patients,family members,doctors and medical organizations can make the social mobilization against the diabetes stigma more effective.