间歇性外斜视儿童生存质量特点分析

Features of quality of life in children with intermittent exotropia

目的探讨间歇性外斜视（IE）儿童生存质量特点。方法以2013年1月1日至2015年6月30日期间在本院诊治的95例IE患儿为研究对象，年龄8～17岁。记录一般临床资料，应用中文版斜视儿童生存质量量表（IXTQ）进行评估，包括患儿自我评估和其父亲或母亲进行的代理评估2部分。结果患儿IXTQ评分和代理IXTQ评分最低的项目均为“有阳光照射时，我（他／她）必须闭上一只眼睛”，最高的项目均为“我（他／她）的眼睛使我（他／她）交朋友有些困难”。与代理IXTQ相比，患儿IXTQ有2个项目“有阳光照射时，我必须闭上一只眼睛”[（61．3±36．8）VS（69．7±28．6），t=2．249．P=0．035）]和“我担心我的眼睛”[（71．8±34．8）VS（78．9±24．1），t=2．157，P=0．042）]的评分较低。结论IE患儿的生存质量受到疾病特异性的影响，需要医护人员和家长提供针对性的措施来改善其生存质量。

Objective To explore the features of quality of life in children with intermittent exotropia（IE）. Methods 95 IE children, 8-17 years old, treated at our hospital from January first, 2013 to June 31st, 2015 were included. The general clinical data were recorded. The Chinese version of intermittent exotropia questionnaire（IXTQ） was used to assess the quality of life, including a self-assessment by the child and a proxy assessment by a parent. Results For the child IXTQ and proxy IXTQ, the item with the lowest mean score was ＂It bothers me that I have to shut one eye when it is sunny＂ and that with the highest was ＂My （his/her） eyes make it hard to make friends＂. Compared with the proxy IXTQ, two of the items, ＂It bothers me that ! have to shut one eye when it is sunny＂ [（61.3±36.8） vs. （69.7±28.6）, t =2.249, P=0.035）] and ＂I worry about my eyes＂ [（71.8 ±34.8） vs. （78.9 ± 24.1）, t =2.157, P=0.042）] had significantly lower scores on the Child IXTQ. Conclusions The effect on the quality of life of IE children is disease-specific. Health care workers and parents need to provide targeted measures to improve their quality of life.