极低出生体重儿父母照顾体验的质性研究

Qualitative study on care experience of parents of very low birth weight infants

[目的]了解极低出生体重儿照顾者在照顾期间内心深处的感受,以探索促进照顾者心身健康的方法。[方法]采用质性研究中的现象学研究方法对11名极低出生体重儿的照顾者进行半结构性访谈,并采用现象学分析法进行资料分析。[结果]采用类属分析法升华出5个关于照顾者感受的主题:心理负担过重、承受压力和痛苦、个人生活的影响、不断适应角色、在照顾活动中实现自我价值。[结论]在研究和关注极低出生体重儿健康时不应忽视照顾者所承受的压力及相关问题,应提供行之有效的干预措施帮助照顾者。

Objective:To probe into the feeling of caregivers of low birth weight infants,so as to explore the ways to promote the physical and mental health of caregivers.Methods:A total of 11 caregivers of VLBW infants received a semi structured interview by the phenomenological research method in qualitative research.The phenomenological analysis method was used to analyze the data.Results:The 5subjects on feeling of caregivers were gained with the method of class analysis:overweight psychological burden,bearing stress and pain,the influence of personal life,the role of continuous adaptation,and the realization of self value in the care activities.Conclusion:In the study and concern about the health of VLBW infants the pressure and related issues of caregivers should not be ignored,and effective interventions should be provided to help caregivers.