唇腭裂患者心理学研究现状及展望

The actual state and future of psychological research correlated with cleft lip and/or palate

随着唇腭裂序列治疗的概念不断深入人心,整个治疗计划中的非手术环节越来越受到关注。其中,唇腭裂患者的心理健康日益受到治疗团队、患者本人以及包括患者家属在内的社会成员的重视。提升患者的生存质量,是新时代背景下唇腭裂这一疾病诊疗的更高要求和目标。然而,唇腭裂患者的心理研究尚处于早期阶段,在我国相关研究开展甚少。目前尚存在患者的长期心理学变化规律不明确、针对性较强的中文版心理学测评工具缺乏、各种与唇腭裂这一疾病相关的心理问题产生机制不清楚等难题。本文综述了大量中外学者针对唇腭裂患者开展的心理研究资料,旨在归纳总结该领域研究的现状,凸显出当前研究热点及前沿,并对今后的研究工作提出设想。

Nowadays, as the cleft lip and/or palate（CLP） treatment approach is progressing rapidly, non-surgical treatment parts draw more and more extra attention. The psychosocial condition of patients with CLP is becoming an important issue in eyes of medical team, patients themselves, and patients＇ family members. A higher goal of treatment for CLP is to improve quality of life of patients and their family members, by progressing each step of treatment approach continuously according to assessment of patients and parents＇ psychosocial outcomes. However, study on this issue is rare and inadequate, especially in our country. There is no mature assessment tool. The mechanism of forming a certain psychosocial condition and the patients＇ long term psychological changing patent are not clear. This review examined the published scientific research on the psychosocial condition of patients with CLP, hoping to summarize the history and actuality of research, and to provide some suggestions and assumptions on this field.