结节病患者的疾病认知与其生活质量的相关性研究

Study on correlation between illness perception and quality of life of patients with sarcoidosis

目的探讨结节病患者的疾病认知与生活质量的相关性。方法采用改良的疾病认知问卷、自填式标准化慢性呼吸问卷、健康调查简表对英国某医药胸科门诊54例结节病患者进行问卷调查。结果结节病患者存在疲乏、呼吸困难等症状,患者疾病认知与生活质量呈负相关。结论医护人员为结节病患者制订非药物性的干预措施前,应了解患者本身对自身疾病的认知以提供更有效的干预措施。

Objective To determine the correlation of the illness perception and quality of life of patients with sarcoidosis. Method Fifty - four patients were investigated with the revised illness perception questionnaire, a Self- administered Standardized Chronic Respiratory Questionnaire （SAS -CRQ） and the MOS Item Short Form Health Survey （ SF - 36 ）. Results Patients with sarcoidosis suffered from symptoms such as fatigue and dyspnea. Their illness perceptions was negatively correlated with quality of life. Conclusion Implication of this study would be to the health professionals that before providing the intervention to the chronic patients, how to rectifying the negative belief of their own illness would be first step.