视网膜病变筛查早产儿家长对疾病认知情况的调查分析

Investigation analysis on the parents' awareness of retinopathy premature infant screening

目的：调查视网膜病变（ROP）筛查早产儿家长对疾病的认知情况。方法：收集2012年5月-2014年5月符合ROP筛查标准的且需行ROP早期筛查早产儿病例212例,将其家长作为宣教对象,按ROP疾病特征和影响因素编制特定的调查/宣教问卷进行调查分析。结果：调查样本中患儿家长对ROP疾病相关知识的认知率普遍较低,对ROP可导致的并发症或预后情况稍有了解,对ROP疾病的致病机理或临床表现知之甚少甚至是不了解的程度;对ROP疾病相关治疗情况均需求迫切,尤其对筛查及护理注意事项、治疗费用及治疗方法需求尤为强烈;针对调查问卷中患儿家长反馈的需求信息,需制定详细的ROP筛查及护理注意事项进行宣教。结论：调查样本中患儿家长对ROP疾病相关知识的认知率普遍较低,对其各项治疗情况均需求迫切,筛查前应做好充分的宣教工作,提高筛查的效果。

Objective： To conduct research on the parents＇ awareness of retinopathy（ ROP） premature infant screening. Methods： Collected 212 premature infant patients date from May 2012 to May 2014 in compliance with ROP screening standards and necessitated to take the ROP screening,and the parents of these patients were educated,and the characteristics of ROP and the impacting factors were used to compile questionnaire / survey report for further investigation and analysis. Results： It was indicated in the survey sample that the parents had rather low recognition for ROP,and the parents understood little bit of the complications or the post prognosis,while the parents poorly understood or almost knew nothing about the pathogenesis or the clinical manifestations of ROP; they were quite eager to know the treatment of ROP,especially for the screening and nursing matters which required attentions,the cost of the treatment and the treatment methods; regarding the feedback information from the questionnaire survey,it was necessary to implement detail ROP screening and nursing guides for further instructions. Conclusion： It was found out that the parents had rather low recognition of ROP related knowledge,and they are quite eager for the treatment situations. Therefore enough instruction should be implemented for the screening to improve the effects.