ICU先心病患儿家属需求评估与影响因素研究

OEvaluation for the needs and it's effective factors for parents of children with congenital heart disease in pediatric intensive care unit

目的调查ICU先心病患儿的父母需求,分析影响患儿父母需求的因素。方法采用中文版危重患者家属需求量表(Critical Care Family Needs Inventory,CCFNI)对92例入住ICU72h内的先心病患儿的父母需求进行调查,采用多元线性回归分析探讨父母需求的影响因素。结果先心病患儿父母需求总分为(3.10±0.41)分,5个维度得分由高到低依次为病情保证(3.71±0.33)分、获取信息(3.49±0.42)分、接近患者(3.43±0.43)分、获得支持(2.66±0.52)分、自身舒适(2.36±0.75)分。人口学因素主要影响患儿父母对病情保证的需求,其中,女孩患儿父母、患儿父亲及30岁以上父母的需求更高。结论ICU先心病患儿父母存在较高的需求,ICU医护人员应重点满足家属对病情保证、获取信息及接近患儿的需求,建立以患儿和家属为中心的ICU照护模式。

Objective To identify the perceived needs for parents of children with congenital heart disease in inten- sive care unit and to explore factors associated with the needs. Methods 92 families were investigated with the Chinese version of critical care family needs inventory （CCFNI） to evaluate parents needs within 72 hours after children＇s ad- mission to the ICU. Bivariate analysis and multiple linear regression analyses were conducted to examine the relation- ship between needs and children and parents demographic and clinical data. Results The average score of parents＇ needs was 3.13±0.41. The five domains score of needs were assurance（3.71±0.33）, information（3.49±0.42）, proximity（3.43±0.43）support（2.66±0.52） and comfort （2.36±0.75） in order from the most important to least important. Needs for assurance were significantly higher in female children, father, and parents aged over 30. Con- clusion Parents of children with congenital heart disease in ICU had obviously high needs. Nurses should value parents need and provide patient and family centered care.