摘要
The purpose of this article is to describe the experience of a young, single, Latina parent whose child has died as a result of a rare, terminal genetic defect in the context of a long standing friendship. The article exantines the communication of an effective bereavement counselor as well as seeks to explore the systematic steps parents could employ to help their children with life limiting illnesses including treatment, palliative care, removing life support, hospice, and managing personal grief. Finally, special considerations were made to be sensitive to pertinent multicultural and spiritual or religious aspects that may be evident in the unique world of parents who have lost a child.
