眼球萎缩患者患病体验的质性研究

Patients′experience of eyeball atrophy:aqualitative research

目的探讨眼球萎缩患者的患病体验及内心感受,为制定有效的护理干预对策提供依据。方法采用质性研究法对15例眼球萎缩患者进行深度访谈,访谈内容根据Colaizzi的现象学分析法进行整理。结果共提炼出就医延迟、躯体感觉异常、负性情绪、社会适应障碍4大主题。结论眼球萎缩患者由于疾病知识缺乏导致就医延迟,存在生理心理问题及社会适应障碍。需对患者开展眼球萎缩疾病知识健康教育,加强心理护理,提供社会支持,有助于提高患者生活质量。

Objective To study eyeball atrophy patientsr illness experience and inner feelings, and to provide evidence for effective nursing intervention measures. Methods Using qualitative approach, 15 patients with eyeball atrophy were interviewed in terms of illness experience, then the interview contents were analyzed according to Colaizzi＇s phenomenological method. Results Four themes were extracted with regard to eyeball atrophy patients＇ illness experience： delayed medical visit, body paresthesia, negative emotions, and social adaptability obstacles. Conclusion Eyeball atrophy patients delayed medical visits due to deficiency in diseaserelated knowledge, and they had physiological and psychological problems, and faces obstacles in social adaptahility. Health care workers need to provide these patients with eyeball atrophy related knowledge, strengthen psychological care, and offer more social supports, in an effort to improve their quality of life.