迈进儿童血友病关怀新时代

Entry into the new era of care for children with hemophilia

血友病诊治得益于科学的进步,作为一种可以致死、致残的先天性凝血异常性疾病,血友病的关怀事业正在不断进步。目前,血友病已从一种威胁生命的疾病转变为终生携带的疾病,临床已看到了治愈的曙光。世界范围内儿童血友病关怀事业面临的主要问题是如何更加合理有效地开展预防治疗、如何有效防控抑制物。而随着血友病关怀领域不断涌现的创新性、革命性的新技术及产品,血友病的关怀理念和策略面临不断更新和挑战。中国作为发展中国家,虽然儿童血友病关怀起步较晚,但进展较快。应用更加个性化的治疗和新的技术产品,中国儿童血友病关怀事业将进入新的时代。

Thanks to the development of science, hemophilia care is improved gradually, and hemophilia is turning ti＇om one of inherited bleeding diseases with death and disability into one of lifelong diseases and it＇ s likely to deal with suc- cessfully in clinics. At present, the main problems of children hemophilia care are how to cost-effectively execute the pro- phylaxis and how to prevent and control the inhibitor. With the creation of novel technologies and products in hemophilia care, the conceptions and strategies of care are facing updating and challenges. Although China is a developing country and is slow in starting the care, the development of Children Hemophilia Care has improved rapidly. With the more indi- vidualized treatment and novel technologies and products, the Children Hemophilia Care will enter a new era.