白血病患儿全程照护模式的探索与实践

Exploration and practice of care cycle in children with leukemia

统一多团队力量,无缝隙链接医院和家庭,提升肿瘤患儿及家庭的整体健康,对儿童血液肿瘤疾病照护具有重要意义。本文全面介绍了全程照护在白血病患儿中的探索与实践,贯穿诊断、住院、出院前准备、延续护理全过程,借助信息系统,评估及关注各阶段需求,促进多学科、医护患合作,最终达到患儿及家庭照护效果最优化,希望对儿童血液肿瘤全程照护有所帮助。

Seamless integration of multidisciplinary practice that includes providing a good linkage among hospital, care providers, patients, and family is an essential way to enhance the well-being of children and their family during the pediatric hematology and oncology care phases. This study introduces the experience and practice of the total cycle of care for children with leukemia. The total care cycle penetrates the whole process of diagnosis, hospitalization, discharge preparation, and post-discharge care continuing process. It utilizes the hospital health informatics platform to assess and evaluate children and family＇s needs in each treatment phase; this care model also improves cooperation among multidiscipline, doctors, nurses, and families. Finally, this total care cycle has achieved the optimal care outcome for children and families during the cancer therapy. This total care cycle approach could help future pediatric hematology and oncology nursing practice.