恶性肿瘤患儿父母心理韧性的质性量化研究

Research on the Resilience of Parents of Children with Cancer and Its Indicators-Adapting A Mixed Method

本研究以78位恶性肿瘤患儿父母为研究对象,采用质性与量性研究相结合的方法收集资料,关注其自孩子发病后的心理韧性的内涵及特点。通过对质性数据的量化处理,共提炼出3个主题,11个亚主题以及318个不同的1级编码,其中3个主题分别为"成为一个合格的父亲/母亲"、"努力使自己保持希望"和"活在当下的积极应对",分别占总编码的46.9%、29.6%和23.5%。其中"努力成为一个合格的父母"是肿瘤患儿父母心理韧性的重要来源之一,临床医护人员及时的肯定与赞许可以帮助父母完成这一角色。

To explore the elements of resilience in parents of children with cancer diagnosis and their experience in resilience building process.A qualitative study by using semi-structured in-depth interview was conducted in 78 parents with cancerous children and codes were created for semantic content analysis.Among the aspects of the definition qualitatively identified were ＂ To become a qualified father/mother＂, ＂ Efforts to keep hope possible＂, ＂ Courageous coping with living in the moment＂,including 11 subthemes and accounting for 46.9%、29.6%、23.5% of 318 different codes acquired respectively. ＂ To become a qualified father/mother＂ was the most important factor to parents＇ resilience and clinical staffs＇ prompt and positive feedback can help parents to complete the role of ＂qualified parents＂.