颈段脊髓损伤患者上肢功能重建手术认知度的问卷调查

Survey on Awareness of Upper Limb Function Reconstruction in Patients with Cervical Spinal Cord Injury

目的了解国内颈段脊髓损伤患者对上肢功能重建手术的了解和接受程度,分析患者接受上肢功能重建手术的影响因素。方法 2013年10月至2014年6月,采用自行设计调查表对104例颈段脊髓损伤患者进行调查。结果回收有效问卷81份。上肢功能是颈段脊髓损伤患者最渴望改善的功能。仅3例(3.7%)听说过上肢功能重建手术。患者了解上肢重建手术后,手术意愿明显提高(P<0.01)。手高功能指数组和手低功能指数组在手功能满意程度和接受手术意愿方面无显著性差异(P>0.05)。患者对手术花费、手术风险、术后恢复时间、对辅具功能满意度均较为关注,但是患者接受上肢功能重建手术意愿和上述因素不相关(P>0.05)。结论颈段脊髓损伤患者对于上肢功能改善的强烈愿望和患者对上肢功能重建手术的认知度存在明显差距。上肢功能重建手术开展较少,应通过康复医护人员宣教、互联网等手段让潜在的患者了解这项技术。

Objective To survey the attitudes and acceptance level of upper limb function reconstruction in patients with cervical spinal cord injury and analyze the related factors. Methods From October, 2013 to June, 2014, a total of 104 patients with cervical spinal cord injury were surveyed with self- designed questionnaire. Results There were 81 valid questionnaires, in which 3 patients（3.7%） heard of upper-extremity reconstructive surgery. The patients longed for upper limb function improvement most. After they had a understanding of the surgery, their willingness improved（P〈0.01）. No significant difference was found in the satisfaction degree and operation willingness between different hand function groups（P〉0.05）. The patients focused on the operation cost, the operation risk, recovery time after operation and the satisfaction of assistive devices, however, they were not correlated with the willingness of upper limb function reconstruction（P〉0.05）. Conclusion There is a clear gap between strong desire for functional improvement of upper limb and surgery awareness. It is important to communicate upper limb among patients with cervical spinal cord injury.