杭州市1～3岁儿童父母亲孤独症相关信息知晓情况调查

Autism Awareness in Parents of Children Aged 1-3 Years

目的:了解杭州市1~3岁儿童父母亲对孤独症相关信息知晓情况,为早期诊断及早期干预治疗提供科学依据。方法:采用横断面调查方法,在杭州市8个行政区内抽取7个社区卫生中心对5263名1~3岁儿童作为调查对象的父母亲中开展对孤独症信息知晓的现况调查。结果:父母亲对儿童孤独症三大症状的知晓主要表现在认为孤独症就是性格孤僻的有3004名(57.1%)、孤独症是一种严重的婴幼儿广泛发育障碍的有2578名(49.0%)、孤独症是语言发育障碍的有1800名(34.2%)。了解孤独症的渠道依次是报纸杂志、书籍、电视/电影、亲友邻居当中有自闭症、医生或专家介绍、其他。不同学历的父母亲对孤独症的了解差异显著(χ~2=105.86,129.27;P<0.001)。结论:本研究的儿童父母亲对孤独症相关信息有一定的知晓,为进一步开展社区宣传教育提供了有利依据。

Objective：To estimate the status of autism awareness among the parents of children aged 1-3 years, and provide the basis for early diagnosis and intervention.Methods： A cross--sectional survey was conducted in the 8 districts of Hangzhou.7 community health centers were randomly selected and parents of totally 5263 children aged 1 -3 years were investigated with the self-made questionnaire for the status of autism awareness.Results：The number or percentage that thinking the autism was a kind of asocial personality which was one of three main symptoms on autism was 3004 （57.1 %） ; The number of a kind of serious pervasive developmental disorders was 2578 （49.0 %） , and a kind of speech development retardation was 1800 （34.2%）. The channels to get the information about the autism were papers and magazines, books, TV/Movies, patients from relatives and neighbors, doctors or experts and others in sequence. Parents with different education background were significantly different in understanding the autism（χ2= 105.86,129.27, P〈0.001）. Conclusion：The investigated parents understand the information on autism to a certain extent. And it is beneficial to provide basis to develop health education in community.