阿尔茨海默病患者照料者生命质量与主观幸福感的关系

The Relationship between Quality of Life and Subjective Well-being in Caregivers of Patients with Alzheimer's Disease

目的:探讨阿尔茨海默病(AD)患者照料者主观幸福感与生命质量现状的关系,为AD患者照料者的干预研究提供理论支持。方法:采用健康测量量表(SF-36)、总体幸福感量表(GWB)对200名患者照料者进行调查。结果:(1)AD患者照料者的生命质量各维度得分与常模均有显著性差异,生理功能、生理职能、躯体疼痛、总体健康、活力、社会功能、情感职能、精神健康(t=-11.463,-12.487,-36.390,-10.801,-9.658,-25.556,-5.584,-13.298;P<0.001)显著低于常模;(2)不同子女情况的AD患者照料者在生理功能、生理职能、总体健康、活力、社会功能、情感职能(t=-2.534,-7.205,-3.177,-3.397,-4.277,-4.591;P<0.001)6个维度及生命质量总分(t=-9.608,P<0.001)、主观幸福感总分(t=-2.613,P<0.05)上差异具有显著性;(3)主观幸福感总分与生命质量总分、生理功能、生理职能、情感职能、总体健康(r=0.446,0.591,0.553,0.284,0.760;P<0.01)均呈显著正相关;(4)主观幸福感得分可以显著预测生命质量量表总分(F=49.168,P<0.001)。结论:(1)AD患者的生命质量状况低于全国水平;不同子女情况是影响AD患者照料者生命质量、主观幸福感的因素;(2)主观幸福感越强,AD患者照料者的生命质量水平越高。

Objective ：To explore the relationship between quality of life and subjective well - being in caregivers of patients with Alzheimer＇s disease （AD ） ,and provide the theory basis for the study of caregivers of AD patients . Methods ：The health survey scale （SF - 36） ,general well - being scale （GWB）were used to survey 200 caregivers of AD patients .and used SPSS17 .0 to input data for analysis .Results ：① The quality of life in caregivers of patients with AD such as physical functioning （t = -11 .463 ,P 〈 0 .001） ,role physical （t = -12 .487 ,P 〈 0 .001） ,bodily pain （t =-36 .390 ,P 〈 0 .001） ,general health （t = -10 .801 ,P 〈 0 .001） ,vitality （t = -9 .658 ,P 〈 0 .001） ,social functioning （t =-25 .556 ,P 〈 0 .001） ,role emotional （t = -5 .584 ,P 〈 0 .001） ,mental health （t = -13 .298 ,P 〈 0 .001）was significantly lower than the norm .② Different children of caregivers of patients with AD had significant differences in physical functioning （t = -2 .534 ,P 〈 0 .05） ,role physical （t = -7 .205 ,P 〈 0 .001） ,general health （t = -3 .177 ,P 〈 0 .01） ,vitality （t = -3 .397 ,P 〈 0 .01） ,social functioning （t = -4 .277 ,P 〈 0 .001） ,role emotional （t = -4 .591 ,P 〈 0 .001）6 dimensions and the total score of quality of life （t = -9 .608 P 〈 0 .001） ,scores of subjective well - being （t = -2 .613 ,P 〈 0 .05） .③The total score of subjective well - being was significantly positively correlated with total score of quality of life （r =0 .446 ,P 〈 0 .01） ,physical functioning （r = 0 .591 ,P 〈 0 .01） ,role physical （r = 0 .553 ,P 〈 0 .01） ,role emotional （r =0 .284 ,P 〈 0 .01） ,and general health （r = 0 .760 ,P 〈 0 .01） .④ The score of subjective well - being could significantly predict the total score of quality of life （F = 49 .168 ,P 〈 0 .001） .Conclusion ：① The quality of life in caregivers of pa-tients with AD is lower than the national norm ;different number of children is an important influential factor of quality of life and subjective well - being .② Subjective well - being is stronger ,the higher is quality of life of caregiv-ers of patients with AD .