社区失智老年人居家照顾者照顾体验的调查研究

Caregiving experience study of family caregivers of senile dementia patients in community

目的全面了解社区失智老年人居家照顾者的照顾体验，包括照顾负荷及积极感受现状，探索两者之间的相关性。方法应用失智老年人居家照顾者负担量表（CBI）、照顾者积极感受表（PAC）对80名社区失智老年人居家照顾者进行测评。结果80名社区失智老年人居家照顾者照顾负荷CBI得分（54．73±13．15）分，积极感受PAC得分（28．53±5．37）分，照顾者照顾负荷与积极感受呈负相关（r=0．243，P〈0．05）。结论社区失智老年人居家照顾者照顾负荷较重，积极感受水平中等。建议社区医疗单位需全面了解照顾者的照顾体验，注意对照顾者进行正向积极引导，减轻照顾负荷，提升居家照顾者的积极感受，为照顾者提供专业的帮助和支持。

Objective To get a more comprehensive view of caregiving experiences, and describe the caregiver burden and the positive aspects of caregiving of family caregivers of senile dementia patients in community and to explore the relationship between the caregiver burden and the positive aspects of caregiving. Methods Totally 80 family community-dwelling caregivers of senile dementia patients in community were investigated by Caregiver Burden Inventory （CBI） and Positive Aspects of Caregiving （PAC） questionnaires. Results The score of CBI was 54.73± 13.15 and the score of PAC was 28.53± 5.37. The score of PAC was negatively correlated with the caregiver burden （r=-0.243, P〈0.05）. Conclusions The caregiver burden of the family community-dwelling caregivers of dementia patients is high and the positive aspects of caregiving is at middle level. Professional help and support should be provided to the family caregivers of dementia patients by the community health service centers on the premise that the caregiving experience is fully understood. Our aim is to reduce their burden, strengthen the caregiving skills and improve the positive aspects of caregiving simultaneously.