早产儿视网膜病变患儿家长对眼部筛查的认知调查（英文）

Parental awareness of the need for screening of retinopathy of prematurity in Northern China

目的:分析中国北部地区患有重度早产儿视网膜病变患儿的家长对该病的认知情况。方法:采用问卷调查形式。问卷于2013-01/2013-04发放并回收,问卷对象为230名患有重度早产儿视网膜病变患儿的家长。问卷收集了患儿的基本情况和家长对该病认知度的信息。结果:回收有效问卷共计221(96.1%)份,其中128(57.9%)名患儿曾在住院期间接受过眼底检查,208(94.1%)名患儿家长曾被儿科医生告知并建议进行早产儿视网膜病变筛查,而13(5.9%)名患儿家长并未曾被告知进行眼底筛查。仅有159(71.9%)名患儿家长对早产儿视网膜病变有所了解,而62(28.1%)名患儿家长对该病一无所知。由于晚期早产儿视网膜病变(如Ⅳ期或Ⅴ期病变)预后极差,患儿家长是否被医生告知需要进行眼底检查与病变的严重程度密切相关(P<0.001),一定程度上影响患儿的预后。然而,医院的级别与家长是否知情之间并无显著相关关系(P=0.625)。结论:中国北部地区的儿科医生和早产儿家长对于早产儿视网膜病变的认知有待进一步提升。而儿科医生与眼科医生对于患儿家长进行更多的沟通和宣教将有助于改善现状。

AIM： To analyze the awareness of retinopathy of prematurity （ROP） among parents of ROP patients in Northern China. METHODS：A questionnaire was given to 230 parents of ROP infants and collected in person between Jan. and Apr. 2013. Basic information on the ROP infants and the parents＇ awareness of ROP were collected from the parents. RESULTS： In all, 221/230 （96.1%） questionnaires were returned. Based on these completed responses, 128 （57.9%） premature infants received screening during hospital stays, 208 （94.1%） parents were informed about screening and received a recommendation for screening by pediatricians, and 13 （5.9%） parents did not receive any recommendation for screening. Only 159 （71. 9%） parents were aware of ROP, while 62 （28.1%） were not aware of the disease. Because stages 4 and 5 of ROP had a poor prognosis, we determined whether parents were informed by pediatricians closely associated with the severity of ROP （ P〈 0. 001 ）. However, we found no association between the grade of hospital and whether the parents were informed （ P= 0.625）. CONCLUSION： Awareness of ROP among parents and pediatricians in Northern China still needs to be improved. Better and more timely communication and education of parents regarding ROP from pediatricians and ophthalmologists will help.