难治性肾病患儿家庭坚韧性调查及影响因素分析

Investigation of family hardiness and its influencing factors in children with refractory nephrotic syndrome

目的分析难治性肾病综合征(RNS)患儿家庭坚韧性现状及其相关影响因素。方法应用横断面调查法对2013年1月至2016年2月该院收治的120例RNS患儿的家属进行调查,采用自拟一般资料调查表、家庭坚韧性量表(FHI)、自我效能感量表(GSES)、焦虑自评量表(SAS)、抑郁自评量表(SDS)、简易应对方式问卷(SCSQ)进行调查与评价,总结难治性肾病患儿家庭坚韧性现状,分析其影响因素。结果 (1)RNS患儿家庭坚韧性得分中责任维度得分最高,其次为控制维度;患儿家属自我效能感评分处于中等水平,焦虑、抑郁评分均处于轻度焦虑/抑郁水平,其应对方式中积极应对积分较高。(2)单因素分析显示:患儿治疗时间、患儿家属文化程度、居住地、家庭人均月收入、医疗付费方式是影响家庭坚韧性评分的相关因素(P<0.05);Pearson相关分析显示:自我效能感评分、积极应对评分与家庭坚韧性评分呈正相关(r=0.425、0.536,P=0.011、0.002),焦虑、抑郁评分与家庭坚韧性评分呈负相关(r=-0.581、-0.671,P=0.001、0.000);多元回归分析显示:家庭人均月收入、自我效能评分、焦虑评分、抑郁评分、积极应对均为影响家庭坚韧性的独立因素(P<0.05)。结论 RNS患儿家庭坚韧性处于中等偏上水平,家庭月收入、患儿家属自我效能感、积极应对方式、焦虑及抑郁情绪均为影响家庭坚韧性的相关因素。

Objective To analyze the status of family hardiness and its influencing factors in children with refractory ne- phrotic syndrome （RNS）. Methods A cross-sectional study was carried out in the family members of 120 children patients with RNS admitted to our hospital from January 2013 to February 2016. The general information questionnaire, family hardiness scale （FHI） ,general self-efficacy scale （GSES）,self-rating anxiety scale （SAS）,self-rating depression scale （SDS） and simplified coping style questionnaire （SCSQ） were used for investigation and evaluation. The status of family hardiness of children patients with RNS was summarized and its influencing factors were analyzed. Results （1）Among the scores of family hardiness in patients of children with RNS, the score of responsibility dimension was the highest, followed by the score of control dimension. The self-efficacy scores of the family members were in the middle level, the scores of anxiety and depression were in mild level, and the score of positive cop- ing was relatively higher. （2）The univariate analysis showed that the treatment time, education level of family members, place of residence,family per capita monthly income and medical payment method were the related factors influencing the family hardiness score （P〈0. 05） ;the Pearson correlation analysis showed that self-efficacy score and positive coping score were positively correla- ted with the family hardiness score （r=0. 425 ,P：0. 011 ;r=0. 536 ,P=0. 002） ,while the anxiety and depression scores were neg- atively correlated with the family hardiness score （r=-0, 581, P = 0.001 ; r=- 0.671, P = 0. 000）. The multivariate regression a- nalysis showed that the family per capita monthly income, self-efficacy score, anxiety score, depression score and positive coping were the independent factors influencing the family hardiness. Conclusion The family hardiness of patients of children with RNS is in the middle and upper level. The family income ,self-efficacy of family members, positive coping style, anxietY and depression emo- tions are related factors influencing family hardiness.