社会支持和应对方式对肌萎缩侧索硬化患者生活质量的影响

Influence of social support and coping style on quality of life for patient with amyotrophic lateral sclerosis

目的探讨社会支持和应对方式对肌萎缩侧索硬化(ALS)患者生活质量的影响。方法选取2015年2月~2016年2月在本院神经内科就诊、住院的ALS患者100例,进行一般资料、社会支持评定量表(SSRS)、医学应对问卷和生活质量问卷调查,并对调查结果进行相关性分析。结果 ALS患者社会支持总分≥50分者占43%,30~49分者占14%,社会支持总分<30分者占43%,社会支持高分组在生活质量量表8个维度的得分均高于低分组,差异具有统计学意义(P<0.05)。患者多采取回避和屈服这两种应对方式。结论帮助患者领悟社会支持,建立良好的应对方式有利于减少其负性心理情绪对健康的影响,提高患者的生活质量,减少并发症。

Objective To investigate the influence of social support and coping style on quality of life for patient with amyotrophic lateral sclerosis. Methods 100 ALS patients who were treated and hospitalized in neurology department during Feb.2015 to Feb. 2016 were investigated on general information,Social Support Rating Scale（SSRS）,Medical Coping Modes Questionnaire（MCMQ） and life quality questionnaire,and correlation analysis were conducted on survey results. Results ALS patients whose social support grades were greater than or equal to 50 account for 43%, 30 - 49 account for14%, less than 30 account for 43%. The patients whose social support grades were higher still had higher score of 8 dimensions of life quality scale than the patients whose social support grades were lower（P〈0.05）. Most of patients took avoidance and surrender as coping styles.Conclusion Helping patients to comprehend and accept social support,and to take better coping style will reduce the influence of negative emotions on health,reduce complications,and improve the quality of patients＇ life.