肾移植前行血液透析患儿父母照顾体验的质性研究

The Caring Experience of Parents of Children with Hemodialysis before Kidney Transplantation:A Qualitative Research

目的了解肾移植前进行血液透析过渡的患儿父母照顾在照护患儿时的内心感受,以期为制定有针对性的干预措施提供参考。方法采用目的抽样法,选取2016年1-8月在郑州市某三级甲等医院血液净化中心进行维持性血液透析的患儿父母为研究对象,采用半结构式访谈方法对其进行深度访谈,采用Colaizzi的现象学7步分析法对访谈资料进行分析后整理提炼主题。结果通过对访谈资料进行分析,得出以下5个主题:知识缺乏、心理压力过重、经济压力沉重、迫切需求支持系统、家庭应对无效。结论护理工作者在护理患儿的同时,也应关注患儿父母的感受,对其提供专业的知识指导及心理疏导等支持,以减轻其心理负担,以期促进患儿健康的同时改善患儿父母的生活质量,从而更好地实现优质护理。

Objective To deeply understand the inner feelings of parents of children with hemodialysis be- fore kidney transplantation, in order to provide reference for the targeted countermeasures.Methods By using purposive sampling methods, parents of children underwent hemodialysis from January to August 2016 were selected, and investigated by semi-structured interviews,and data was analyzed using Colaizzi 7 steps phenomenological analysis method.Results The parents＇ feelings were classified into 5 themes, in- cluding knowledge deficit, heavy psychological burden, heavy economic burden, urgent demand for sup- port system, respond negatively. Conclusion Except of caring the sick children, there is a need to pay attention to parents＇ feelings, and provide them with professional guidance and psychological counseling, release their psychological burden, in order to promote the health of children and improve parents＇ quality of life at the same time.