急性一氧化碳中毒后迟发型脑病患者照顾者的照护体验

Nursing care experience of caregivers of patients withdelayed encephalophathy after acute carbon monoxide poisoning： a qualitative study

目的探讨急性一氧化碳中毒后迟发型脑病患者照顾者的居家照护体验。方法采用半结构式访谈法，访谈14名已有照护一氧化碳中毒后迟发型脑病患者经验者，并依据Miles和Hurberman提出的质性研究资料分析法予以分析。结果经不断分析比对，共析出“角色冲突”“照护负荷”“支持缺乏”“社交受限”四大主题。讨论临床工作者可在患者入院初期开始，制订其个性化延续护理方案，帮助照顾者纠正错误认知，助其适应角色转变；提供专业性意见或支持，并联络其他社会支持等，增加其社会资源，增强照护信心；并能为照顾者提供情绪宣泄机会，以缓解其照护负荷。促进照顾者实现其良好心理适应，从而有利于患者康复，提高生命质量。

Objective To explore the home nursing care experience of caregivers of patients withdelayed encephalophathy after acute carbon monoxide poisoning. Methods Using qualitative analysis method proposed by Miles and Hurberman, authors analyzednursing experience of the caregivers, by semi-structured interview with 14 caregivers to understand the trajectory of their nursing care at home. Results Semi-structured interviews found that patients with delayed encephalophathy after acute carbon monoxide poisoning have experienced four main themes, including role conflicts, care load, lack of support and social isolation. Discussions Clinical professionals know home nursing care experience of caregivers, and their physical and mental reactions, and care requirements, etc., so that establishing one personalized care program at the time of its admission, reasonable arranging for their daily life after discharge, and straining their psychological adjustment skills.