孤独症谱系障碍儿童家庭疾病负担的现状与思考

Status and thoughts on family disease burden of children with autism spectrum disorders

近年来孤独症谱系障碍(autism spectrum disorder,ASD)患病率在全球范围内呈明显上升趋势,已成为广泛关注的公共卫生问题。ASD儿童长期、高强度的康复训练大大增加了其家庭的经济和精神压力,严重影响家长的健康状况及生存质量。本文主要介绍了现阶段中国ASD儿童家庭的经济负担、养护负担、亲职压力等现状以及目前国家针对ASD的救助和帮扶政策,提出了减轻ASD患儿家庭疾病负担的几点思考与建议,供相关人员了解和参考。

In recent years, the prevalence of autism spectrum disorders（ ASD） has been dramatically increasing around the world and has become a public health issue. The long-term and intensive rehabilitation of ASD children has greatly increased the economic and mental stress on their families and severely affected their health and quality of life. This article mainly introduced the economic and nursing care burden, the parental stress pressure in ASD families, as well as the current aid policies for ASD domestically. Finally some suggestions on reducing the family disease burden are put forward for stakeholder＇s understanding and reference further.