摘要
"精准医学"作为一种新型医学概念与医疗模式,正在使医学实践变得越来越个体化。在这一新的医学研究和医疗模式中,患者不再仅仅是医疗的对象或客体,而是医学研究和临床实践的更加积极的参与者。这一医学模式的转变,不仅将先前围绕基因组测序技术的伦理争论,如知情同意、隐私、歧视等问题进一步推向医学生命伦理学的前沿,而且带来了新的挑战,包括个体化医学背景下的个人选择、自主和责任,医疗资源的公平分配,生物信息数据的安全,以及强烈的商业化取向可能带来的监管方面的挑战。由于处于全新的医学科学技术和医疗实践背景之下,这些宏观和微观层面的问题的边界并不那么清晰,"精准医学"有可能带来并不精准的伦理、法律和社会后果。
As a new medical concept and mode,＂precision medicine＂is making medical practice more and more individualized. In this new medical research and treatment mode,patients are no longer mere objects for medical treatment,but be more active participants in medical research and clinical practice. The transformation of this medical mode not only pushes the previous ethical arguments on genome sequencing technologies,such as informed consent,privacy and discrimination,to the frontiers of medical bioethics,but also brings new challenges,including individual choices in the context of individualized medicine,autonomy and responsibilities,fair distribution of medical resources,the safety of bio-information data and the possible regulatory challenges brought by strong commercialization orientation. Under the background of new medical science,technology and medical practice,the boundaries of these macro-level and micro-level issues are not so clear,＂precision medicine＂may bring imprecise ethical,legal and social consequences.
作者
李磊
王国豫
LI Lei;WANG Guoyu(Department of Philosophy,Dalian University of Technology,Dalian 116024,China;School of Philosophy,Fudan University,Shanghai 200433,China)
出处
《中国医学伦理学》
2018年第9期1096-1101,共6页
Chinese Medical Ethics
基金
国家重点研发计划"精准医学研究"重点专项:精准医疗伦理
政策法规框架研究(SQ2017YFSF090029)
关键词
精准医学
个人权利与责任
社会公正
监管与治理
Precision Medicine
Personal Rights and Responsibility
Social Justice
Regulatory and Governance
