30～50岁肿瘤患者及家属现状的质性研究

Qualitative research on the status of cancer patients at the age 30 to 50 and their families

目的探讨30~50岁被确诊肿瘤的患者及其家属的生活现状。方法采用目的抽样法,选取30~50岁年龄段被确诊肿瘤且入住某医院肿瘤科的患者家属共10名进行质性访谈,采用现象学分析法分析资料。结果对肿瘤患者家属的访谈提炼出5个主题:家属对疾病的治疗态度积极;疾病对家庭经济、子女和老人等方面影响较大;家属及患者的压力较大,排解方式选择沉默;家属对患者隐瞒或部分隐瞒病情及对未来的打算不明确。结论 30~50岁肿瘤患者患病后对其家庭的影响是巨大且多方面的,比较突出的是较大的心理压力、经济负担加重、子女的成长等,因此对于此年龄段肿瘤患者及家属实施临终关怀时要关注患者及家属的心理压力的疏导,且特别要关注未成年子女的成长。

Objective To investigate the life status of the patients（ aged from 30 to 50 year old） who were diagnosed with cancers and their families. Methods By using the objective sampling method,a total of 10family members of tumor patients who were aged from 30 to 50 year old and admitted to oncology department of a hospital were qualitatively interviewed.The analysis of the data was carried out by using phenomenological analysis.Results The interview enrolled five topics： The family members have a positive attitude to the treatment of the disease. The disease has great influence on the family economy,the children and the elder. The patients and their family members were under huge pressure,but they chose to bear psychological pressure by themselves. The family members chose to not to told the truth,and the future is not clear. Conclusions When the patients aged from 30 to 50 years old were diagnosed with cancer,the influence on their families was great and extensive. The prominent aspects were under huge psychological pressure,economic burden getting heavier,then influence on the growth of their children. So that,when implementing hospice care on these kind of patients and their family members we should pay more attention on the guidance of psychological pressure,and especially on the growth of their minor children.