脑性瘫痪儿童主要照顾者心理状况对疾病家庭管理的影响

Effects of Psychology of Caregivers for Children with Cerebral Palsy on Family Management

目的探讨主要照顾者心理状况对脑瘫儿童家庭疾病管理状况的影响。方法 2013年8月至2014年8月,采用一般情况调查表、家庭管理测量量表、心理弹性量表、焦虑自评量表、抑郁自评量表、幸福指数量表对222例脑瘫儿童的主要照顾者进行问卷调查。结果脑瘫儿童家庭管理测量量表中父母疾病管理能力、父母对患儿疾病担心、父母管理困难、父母疾病精力消耗、父母相互支持评分均显著高于中间值(t>8.866,P<0.001),心理弹性量表、焦虑自评量表、抑郁自评量表评分显著低于国内常模(t>5.523,P<0.001),幸福指数为(7.63±2.96)分。回归分析显示,家庭疾病管理各维度的影响因素包括患儿住院次数、家长康复预期、家长心理状态(包括焦虑、心理弹性),以及幸福指数(P<0.05)。结论脑瘫儿童主要照顾者心理状况及疾病家庭管理整体状况不容乐观,照顾者心理状况影响疾病管理。

Objective To explore the effects of psychology of caregivers of children with cerebral palsy on family management.Methods From August,2013to August,2014,the main caregivers of222children with cerebral palsy were investigated with questionnaires of demography,Connor-Davidson Resilience Scale(CD-RISC),Index of Well-being,Self-rating Anxiety Scale(SAS),Self-rating Depression Scale(SDS)and Family Management Measure(FaMM).Results The scores of Condition Management Ability,View of Condition Impact,Condition Management Effort,Family Life Difficulty and Parental Mutuality of FaMM were higher than the median(t>8.866,P<0.001).The scores of CD-RISC,SAS and SDS were less than the norms of Chinese(t>5.523,P<0.001).Index of Well-being was(7.63±2.96).The factors related with the dimensions of family management included the time of hospitalization of children,the expectation of rehabilitation,the levels of anxiety and psychological resilience,and the index of well-being of the parents(P<0.05).Conclusion The psychology of caregivers of children with cerebral palsy and family management are dissatisfactory,and the psychology may influence family management.