维持治疗期急性淋巴细胞白血病患儿主要照顾者负担的影响因素分析

Influencing factors of burden on primary caregivers of children patients with acute lymphoblastic leukemia during maintenance period

目的探讨急性淋巴细胞白血病(ALL)患儿维持治疗期间照顾者负担的影响因素。方法采用便利抽样法,选取2015年10月-2016年10月在首都医科大学附属北京儿童医院就诊的86名ALL患儿维持期照顾者为研究对象。采用一般资料调查表、照顾者负担问卷(CBI)对其进行调查。共发放问卷86份,回收有效问卷80份。结果80名维持治疗期间ALL患儿主要照顾者的CBI总分为(47.22±13.71)分,得分范围14~81分。多元回归分析结果显示,疾病危险度、支付方式为照顾者负担的主要影响因素(P<0.01)。结论ALL患儿照顾者的负担较重,疾病危险度及医疗费用支付方式为照顾者负担的主要影响因素。医务人员应对维持治疗期ALL患儿照顾者的负担状况予以重视,适当地提供心理与社会方面的支持,提高其应对水平。

Objective To explore the influencing factors of burden on primary caregivers of children patients with acute lymphoblastic leukemia( ALL) during the maintenance period. Methods Totally 86 caregivers of children patients with ALL during the maintenance period who were admitted in Beijing Children's Hospital from October 2015 to October 2016 were selected using convenient sampling and investigated with the general information questionnaire and Caregiver Burden Inventory( CBI). Totally 86 questionnaires were distributed, and 80 valid questionnaires were collected. Results The score of CBI on the 80 primary caregivers of children patients with ALL during the maintenance period was( 47.22±13.71), ranging from 14 to 81. Multiple regression analysis showed that degree of risk and payment method were the main influencing factors of caregiver burden( P<0.05). Conclusions The burden on primary caregivers of children patients with ALL during the maintenance period is heavy, and degree of risk and payment method were the main influencing factors of caregiver burden. Medical workers should pay attention to the burden on primary caregivers of children patients with ALL during the maintenance period and provide psychological and social support to them properly to improve their response level.