摘要
目的:初步调查国内口腔头颈-颌面肿瘤(HNC)吞咽康复开展现状。方法:采用自行设计的问卷进行网络调查,问卷通过口腔肿瘤科医生、康复医学科医生、言语治疗师(ST)、国内外在校ST教师共同拟定、探讨、确定。采取随机调查的方式,问卷以网络在线调查形式,通过微信发放问卷链接至ST相关群组,并于问卷星网(www.sojump.com)填写并回收。结果:本次问卷共回收130份,有效问卷126份,涵盖中国27个地区,111家医院。其中接诊过HNC患者的受访者为65人。对这65份问卷分析后发现:治疗人员多为兼职或转行而来,从事ST或HNC吞咽康复年数较短;绝大多数治疗人员曾治疗过少量HNC患者;患者大部分来自于相关临床科室病区会诊、转诊;大部分治疗人员对治疗效果自我满意度较好,且认为老百姓对HNC吞咽康复的认识度不高是影响工作开展及治疗效果的主要因素。结论:国内HNC吞咽康复治疗尚处于起步阶段,需通过治疗人员专业化、教育体系系统化、相关科室合作化、患者宣教普遍化等来加快、加强工作开展,提高治疗水平,帮助更多患者。
Objective:To investigate the current situation of swallowing rehabilitation for head and neck cancer(HNC) in China. Methods:A self-designed questionnaire was used to conduct a network survey. The questionnaire was formulated, discussed and determined by oral oncologists, rehabilitation physicians, speech therapists(ST) and ST teachers in China and abroad. Randomized survey was conducted, and the questionnaire was linked to ST-related groups by means of a web-based online survey. The questionnaire was filled out and collected at www.sojump.com.Results:A total of 130 questionnaires were collected and 126 questionnaires were valid, covering 111 hospitals in 27 regions of China. Among them, the number of respondents who received HNC was 65. After analyzing the 65 questionnaires, it was found that most of the participants were part-time or transferred, and they had shorter rehabilitation years in ST or HNC. Most participants have treated a small number of HNC patients. Most of the patients came from consultation and referral in the wards of the relevant clinical departments. Most of the therapists had good self-satisfaction with the treatment effect, and the people’s low awareness of the rehabilitation of HNC swallowing was the main factor affecting the development of work and the treatment effect.Conclusion: Rehabilitation treatment of HNC swallowing is still in its infancy in China. It is necessary to speed up and strengthen the work, improve the treatment level and help more patients through specialization of treatment personnel, systematization of education system, cooperation of related departments and popularization of patient education.
作者
唐燕
徐丽丽
范帅
沈淑坤
贺英
陈旸
Tang Yan;Xu Lili;Fan Shuai(Department of Rehabilitation Medicine,the Ninth People's Hospital Affiliated to Shanghai Jiaotong University School of Medicine,Shanghai (200011)
出处
《中国康复》
2019年第5期257-261,共5页
Chinese Journal of Rehabilitation
基金
上海市卫生计生系统重要薄弱学科建设计划(2015ZB0404)
奉贤区临床诊疗中心建设计划(fxlczlzx-a-201706)