高级别胶质瘤术后的延续护理对出院患者及家庭护理者的影响

Effect of continuous nursing after high-grade glioma operation on discharged patients and family nurses

目的调查和分析高级别胶质瘤(HGG)术后的延续性护理对患者与相关护理者的作用。方法选择2012年4月~2018年2月间,41例符合条件的Ⅲ~Ⅳ级术后HGG患者和家庭护理人员,采取2月的延续性护理。延续性护理效果评估,采用改良FACTO量表评估患者生活质量。结果41名患者和45名家庭护理者完成调查结论。对于护理的一般意见、提供的临床护理知识、不良反应及副作用处理方面,很有帮助的分别为:82.9%、87.8%、58.4%、61.0%(患者);84.4%、86.7%、73.4%、53.3%(家庭护理者)。延续的护理对患者生活质量评估,表现在患者的情绪改善,在干预前、后的得分差异具有统计学意义(P<0.05)。患者的生理状态、社会/家庭健康和功能健康的得分在干预前后的变化没有统计学意义(P>0.05)。患者对延续性护理的满意度调查,从1分“很差”到10分“非常优秀”的系列排次,评8分人数最多。对家庭护理者心理调查结果主要反映在焦虑/抑郁,其它因素为经济负担增加和精神生活的限制。结论对HGG患者术后的延续性护理有助提高患者的生活质量。

Objective To investigate and analyze the effect of continuous nursing on patients and related nurses after high-grade glioma(HGG) surgery.Methods Between April 2016 to February 2018,41 eligible HGG patients received a continuous nursing for 2 months after discharged.Assessment was by open discussion and a semi-structured questionnaire,together with the Quality of Life Assessment with Modified FACT O Scale.Objects of investigation were patients themselves and family caregiversand 45 family caregivers were also asked to complete a satisfaction questionnaire.Results Fourty-one patients and 45 family caregivers completed the survey.For general nursing advice,clinical nursing knowledge, management of adverse reactions and side effects,the most helpful ones were 82.9%,87.8%,58.4%, 61.0%(patients),and 84.4%,86.7%,73.4%,53.3%(family caregivers).Continuous nursing was mainly reflected in the improvement of patients'emotions.There is a significant difference in scores before and after intervention(P<0.05).There were no significant differences in the scores of patients' physiological status,social/family health and functional health before and after intervention(P>0.05). In survey of patients' satisfaction with continuing nursing,from 1 point“very poor”to 10 points“very excellent”series ranking,the number of people with 8 points was the largest.Psychological survey results of family caregivers were mainly reflected in anxiety/depression.Other factors were the increase of financial burden and the limitation of spiritual life.Conclusion Continuous nursing can improve their quality of life fordischarged patients with HGG.