晚期癌症患者子女践行孝道体验的质性研究

Filial caring behaviour of children whose parents are diagnosed as advanced cancer:a qualitative study

目的了解晚期癌症患者子女在照护父母过程中对孝道的理解及践行孝道过程中的经历与体验。方法采用半结构式访谈提纲个人深度访谈15名晚期癌症患者子女。采用主题分析法分析资料、提炼主题。结果共提炼出3个主题:情感反应、孝父爱母、困境和压力。晚期癌症患者子女通过顺从、陪伴、提高生命质量、满足心愿、隐瞒病情等方面对罹患晚期癌症的父/母行孝。但他们在该不该告知父/母真实病情时遇到了伦理困境,且存在一定心理压力。结论受我国传统文化影响,晚期癌症患者的子女在父/母患病后用实际行动践行了传统孝道文化的理念。建议护理人员应"泛爱""博爱",带着敬爱之心从事护理工作,自觉自愿、真诚为患者服务,尽最大可能承担晚期癌症患者的照顾任务,协助减轻他们子女的负担,改善他们行孝过程中的负性体验。

Objective To explore these adults′ perspective with filial piety and as well to elucidate adults′experience and filial caring behaviour whose parents were diagnosed as advanced cancer.Methods This is a qualitative study.A semi-structured and individual in-depth interview guide was designed and utilised to explore perspectives of 15 adults whose parents were diagnosed as advanced cancer.Thematic analysis method was adopted to analyse the data,which were synthesised into themes and subthemes.Results Three main themes were explicated: emotional experience,filial caring behaviours for parents and dilemmas and pressures.These adults adopted obedience,accompany,improving quality of life,completing parents’ wish to fulfil their commitment and filial piety during taking care of their cancer parents.However,they encountered ethical dilemmas regarding disclosure or non-disclosure cancer diagnosis to their parents.Conclusions Due to the profound influence of Chinese traditional culture,the adults whose parents were diagnosed as advanced cancer committed their filial caring behaviour to their parents very wholeheartedly and encountered difficulties and dilemmas.Therefore,oncology nurses are advised to share their love to cancer patients,to work with compassion and sympathy and support them by assisting with taking care of their patients,which in turn may facilitate their filial caring behaviours,decrease their pressure and negative emotions.