危重症患儿临终关怀模式的构建

Construction of hospice care model for critical pediatric patients

目的建立科学、符合临床需要的危重症患儿临终关怀模式。方法通过文献检索和半结构式访谈,初步建立危重症患儿临终关怀模式函询问卷,选取全国8所儿童医院的24名专家进行2轮函询,并邀请医疗、护理、心理、营养及社工领域的专家进行团体访谈。结果通过2轮专家函询及团体访谈,确定了危重症患儿临终关怀模式,包括准备阶段、临终阶段、善终阶段,临终阶段的整体性照护包括疼痛管理、营养管理、舒适护理、心理干预。结论危重症患儿临终关怀模式的科学性和可靠性较好,为危重症临终患儿的护理提供了借鉴。

Objective To establish a scientific and clinical hospice care model for critical pediatric patients.Methods Twenty-four experts from eight children's hospitals in China were selected for two rounds of inquiries,and relevant experts in the fields of medicine,nursing,psychology,nutrition and social work were invited to conduct focus group interviews.Results Through two rounds of inquiries and expert focus group interviews,the hospice care model for critical pediatric patients was initially determined,including the initiation of hospice care,and holistic care of hospice children which further included pain management,nutrition management,comfort care and psychological intervention,and hospice care of hospice children.Conclusion The model of hospice care for critical pediatric patients is scientific and reliable,which provides a reference for nursing of critically ill children.