恶性肿瘤患者及家属信息需求现状的多中心研究

Multi-center Study on the Status of Information Needs of Patients with Malignant Tumors and their Families

目的探究恶性肿瘤患者及家属信息需求的现状和影响因素,及其对患者心理状况的影响。方法本研究为多中心横断面调查研究,于2016年1月~2018年7月采用信息需求调查问卷、患者抑郁自评工具(PHQ-9)及广泛性焦虑量表(GAD-7)对恶性肿瘤患者及家属展开调查,并对结果进行统计分析。结果多数患者及家属认为医务人员是主要信息来源,大部分患者及家属对于患者病情的知晓表示满意。对于"患者治愈可能性""治疗方法"以及"治疗后复发转移的可能性",大部分患者及家属认为自己从医务人员或家属处获得了有关的信息;对于"预期寿命",61.38%的肿瘤患者认为自己未从医务人员以及家属处获得有关信息,53.47%的家属认为自己并未从医务人员处获得有关"患者预期寿命"的信息;对于"患者治愈可能性""治疗后复发转移的可能性"及"预期寿命",认为自己"未被告知"的家属比例低于患者;对于目前病情知晓表示满意的患者以及认为自己了解日常生活注意事项的患者更不容易发生焦虑或抑郁。结论多数患者及家属并未从医务人员处获得关于患者的预期寿命的信息,患者对目前病情知晓的满意程度及对日常生活注意事项的了解程度可能会影响患者焦虑、抑郁的发生。

Objective To explore the current status and influencing factors of information needs of patients with malignant tumors and their families,and their impact on patients’psychological status.Methods This study was a multi-center cross-sectional survey.From January 2016 to July 2018,the information needs questionnaire,the patient self-evaluation tool(PHQ-9)and the generalized anxiety scale(GAD-7)were used for malignancy.Tumor patients and their families began investigations and statistical analysis of the results.Results Most patients and their families believe that medical personnel are the main source of information,and most patients and their families are satisfied with the patient’s condition.For"patient cure possibilities","treatment"and"possibility of recurrence and metastasis after treatment",most patients and their families think they have obtained relevant information from medical staff or their families;for"life expectancy",61.38%Tumor patients believe that they have not obtained relevant information from medical staff and their families.53.47%of the family members believe that they have not obtained information about"patient life expectancy"from medical staff;for"patient cure possibility"and"relapse and metastasis after treatment""Possibility"and"life expectancy",the proportion of family members who think they are"uninformed"is lower than the patient;patients who are satisfied with the current condition and patients who think they understand daily life are less prone to anxiety or depression.Conclusion Most patients and their families do not receive information about their life expectancy from medical staff.The patient’s satisfaction with the current condition and the level of understanding of daily life concerns may affect the patient’s anxiety and depression.