我国个人电子健康档案隐私保护现状调查与分析——基于普通公众的视角

Investigation and Analysis of Privacy Protection for Electronic Health Records in China ——From the Perspective of the Public

笔者的论文采用在线问卷调查的方式,对我国社会公众电子健康档案隐私保护现状的感知程度进行调查。结果显示,社会公众对电子健康档案的了解程度较低,84.69%的被调查者担忧健康档案会泄露隐私,63.55%的被调查者亲身经历或听说他人健康档案泄露事件。公众对个人电子健康档案共享利用持比较保守、谨慎的态度。只有24.06%的公众对电子健康档案隐私保护现状满意,但62.46%的公众对电子健康档案隐私保护预期有信心。性别、年龄段、学历和职业都对电子健康档案隐私保护的满意度有显著差异。在调查基础上,本文提出了完善电子健康档案隐私保护法律法规、加强执法力度、完善政府监管体系、加强宣传教育力度、制定科学合理的隐私保护策略、建立电子健康档案全生命周期的隐私保护体系等建议。

In this paper, online surveys are carried out to investigate the public perception of the privacy protection for electronic health records(EHR) in China.The results show that the public has a rather poor understanding of EHR.84.69% of the respondents worry that health information might disclose their privacy unintentionally, and 63.55% of the respondents have experienced or heard about data breaches of health information.The public holds a conservative and cautious attitude towards the sharing and the use of EHR.Only 24.06% of the public are satisfied with the status quo of privacy protection of HER while 62.46% of them have confidence in privacy protection of EHR in the future.It suggests significant divides in satisfaction with privacy protection for EHR between different gender, age group, education background and occupations.Based on the aforementioned investigation, the author puts forward some remedial suggestions, such as perfecting the laws and regulations on the privacy protection for EHR, strengthening the law enforcement, improving the government supervision, promoting the public awareness and training, planning scientific and reasonable privacy protection strategies, and establishing the privacy protection for the whole life cycle of EHR.