系统性红斑狼疮患者婚姻质量及影响因素分析

Analysis of Marriage Quality and Influencing Factors of Patients with Systemic Lupus Erythematosus

目的:调查系统性红斑狼疮患者婚姻质量现状并分析其影响因素。方法:采用一般资料调查表、Olson婚姻质量问卷及系统性红斑狼疮疾病活动指数(SLEDAI)对380例已婚系统性红斑狼疮患者进行调查。结果:患者婚姻质量总分为(326.89±24.57)分,婚姻满意度、经济安排、子女与婚姻、性生活及夫妻交流维度得分均低于常模,差异有统计学意义(P<0.05);不同子女状况、病程、工作状况及疾病活动指数的患者婚姻质量得分比较,差异有统计学意义(P<0.05)。结论:系统性红斑狼疮患者的婚姻质量低于一般人群,医护人员有必要开展有针对性的心理干预,以提高患者的婚姻质量。

Objective:To investigate the status quo of marriage quality of patients with systemic lupus erythematosus(SLE)and analyze the influencing factors.Methods:Three hundred and eighty married patients with SLE were investigated by general information questionnaire,Olson marriage quality questionnaire and SLE disease activity index(SLEDAI).Results:The total score of marriage quality was(326.89±24.57).The scores of marriage satisfaction,economic arrangement,children and marriage,sexual life and communication between husband and wife were lower than the norm,and the difference was statistically significant(P<0.05).The scores of marriage quality of patients with different children's status,course of disease,work status and disease activity index were statistically significant(P<0.05).Conclusion:The marriage quality of SLE patients is lower than that of the general population.It is necessary for medical staff to carry out targeted psychological intervention to improve their marriage quality.