呼吸系统疾病共享档案信息资源的区域性构建及其在支气管哮喘患者随访中的应用

Regional construction of shared archives information resources on the basis of the diseases of respiratory system and its application in follow-up for patients with bronchial asthma

目的:研究呼吸系统疾病共享档案信息资源的区域性档案信息资源共享平台构建及其在支气管哮喘患者随访中的应用。方法:选取医院收治的76例支气管哮喘患者,采用随机数表法将其分为对照组和观察组,每组38例,对照组给予常规随访管理,观察组给予基于呼吸系统疾病共享档案信息资源的区域性档案信息资源共享平台随访管理。采用家庭功能评定量表(FAD)和健康调查简表(SF-36)对两组患者随访期间家庭功能、生活质量进行评分,采用自制患者对随访模式满意度调查量表对随访的满意度进行评价。结果:观察组患者FAD中问题解决、沟通、角色、情感反应、情感介入、行为控制和总功能评分低于对照组,两组比较差异有统计学意义(t=4.358,t=5.274,t=5.884,t=5.396,t=4.774,t=4.298,t=3.899;P<0.05);观察组患者SF-36中机体功能、生理职能、躯体疼痛、总体健康、活力、社会功能、情感智能、精神健康评分高于对照组,两组比较差异有统计学意义(t=9.345,t=8.452,t=9.241,t=7.352,t=6.532,t=6.442,t=5.493,t=6.043;P<0.05);观察组患者对随访人员态度、随访人员专业知识掌握程度以及随访人员解决相关问题能力满意情况好于对照组,两组比较差异有统计学意义(x^2=5.367,x^2=7.225,x^2=8.968;P<0.05)。结论:基于呼吸系统疾病共享档案信息资源的区域性档案信息资源共享平台构建应用于支气管哮喘患者的随访管理,能有效改善患者家庭功能和生活质量,提高患者对随访的满意度。

Objective: To explore and analyze the construction of a regional archive information resource shared platform on the basis of disease shared archive information resources of respiratory system and its application in follow-up for patients with bronchial asthma. Methods: A total of 76 patients with bronchial asthma who underwent treatment in hospital were selected and they were randomly divided into control group and observation group, with 38 cases in each group. The control group was given routine follow-up management and the observation group was given the follow up management with regional archive information resource shared platform based on disease shared archive information resources of respiratory system. The family assessment device(FAD) and SF-36 were adopted to score for family function and quality of life of patients in two groups during follow-up, and the self-made satisfaction questionnaire scale of patients for follow-up mode was adopted to evaluate satisfaction of them. Results: The scores of problem solving, communication, role, emotional response, emotional intervention, behavioral control and total function of FAD of observation group were significantly lower than those of control group(t=4.358, t=5.274, t=5.884, t=5.396, t=4.774, t=4.298, t=3.899, P<0.05), respectively. And the scores of body function, physiological function, physical pain, overall health, vitality, social function, emotional intelligence and mental health of SF-36 of observation group were significantly higher than those of control group(t=9.345, t=8.452, t=9.241, t=7.352, t=6.532, t=6.442, t=5.493, t=6.043, P<0.05), respectively. For the attitude of the follow-up staffs, the degree of grasping professional knowledge of follow-up staffs, and the ability of follow-up staffs in solving relevant problems, the satisfactions of patients in observation group were significantly better than those in control group(x^2=5.367, x^2=7.225, x^2=8.968, P<0.05), respectively. Conclusion: The application of the construction of a regional archive information resource shared platform of the basis of disease shared archive information resources in follow-up management for patients with bronchial asthma can effectively improve the family function and quality of life of patients, and increase satisfaction of patient for follow-up.