儿童自我报告及其主要照顾者报告结局一致性研究

Consistency of Children’s Self-Report and Their Primary Caregivers’Report-Outcomes

目的研究儿童自我报告结局及其主要照顾者报告的儿童相关结局的差异程度.方法2019年4-6月,便利抽取某专科医院门诊儿童及其主要照顾者197对进行调查,应用自行设计的一般资料问卷和儿童患者报告结局测量信息系统(pe-diatric patient-reported outcome information system,Pediatric PROMIS)负性情绪简表儿童报告版和父母报告版进行调查,通过t检验比较儿童及父母报告的差异性,通过Pearson相关性分析检验两者的相关性.结果儿童自我报告及其主要照顾者报告结局的一致性较低,相关系数为0.083~0.386之间.结论主要照顾者报告和儿童自我报告的负性情绪呈显著弱相关,且主要照顾者容易高估儿童的负性情绪水平.建议临床医护人员多关注儿童自我报告的症状,从而促进儿童参与临床决策制度和治疗效果评价.

Objective To determine the difference between children’s self-report outcomes and primary caregiver report outcomes.Methods By convenience sampling method,197 out-patient children and their primary caregivers in a special hospital from April to June 2019 were selected and investigated through a self-designed general information questionnaire and the child-report version and parental-report version of the negative emotion profile of the Pediatric Patient-Reported Outcome Information System(Pediatric PROMIS);the differences between children’s and parents’reports were compared by t-test,and the correlation between them was tested by Pearson correlation analysis.Results The consistency of children’s self-reports and their primary caregivers’reports was low,and the correlation coefficient was ranged from 0.083 to 0.386.Conclusions There is a significant weak correlation between primary caregivers’reports and children’s negative emotions,and the primary caregivers tend to overestimate the level of children’s negative emotions.It is suggested that clinical medical staff should pay more attention to children’s self-reported symptoms,so as to promote children’s participation in clinical decision-making system and treatment outcome evaluation.