肛门闭锁患儿主要照顾者疾病不确定感现状及影响因素分析

The investigation on the status and associated factors of uncertainty of caregivers of children with imperforate anus

目的:了解肛门闭锁患儿主要照顾者疾病不确定感现状及影响因素。方法:采用一般资料调查表、疾病不确定感父母量表、病耻感父母量表以及社会支持量表对229例肛门闭锁患儿主要照顾者进行调查。结果:肛门闭锁患儿主要照顾者疾病不确定感总分为(72.58±14.06)分,多因素线性回归显示,教育水平、照顾者对疾病的接受程度、社会支持和病耻感是照顾者疾病不确定感的独立影响因素(P<0.01),以上因素可解释疾病不确定感总变异的26.9%。结论:肛门闭锁患儿主要照顾者疾病不确定感水平较高,当照顾者学历较低、对疾病接受程度低、社会支持较少且病耻感较强时,其疾病不确定感更加明显。

Objective To investigate the uncertainty level of caregivers of children with imperforate anus,and determine the influence factors.Methods Two hundred and twenty-nine caregivers were enrolled from three tertiary children′s hospital in Eastern China.The caregivers completed the Perception of Uncertainty Scale,Parent Stigma Scale and Social Support Scale.The demographic information of caregivers and affected children were also collected during the survey.Results The average score of uncertainty of caregivers was(72.58±14.06)points,and multiple analysis showed that education level,the acceptance level of disease,social support and stigma were independent determinants of uncertainty(P<0.01),and these factors could account for 26.9%of the variance.Conclusions The caregivers of children with imperforate anus experience a high level of uncertainty,especially those with low education level,share low acceptance level of disease,receive low social support and experience higher level of stigma.