强直性脊柱炎/脊柱关节炎患者实践指南

Practice guideline for patients with ankylosing spondylitis/spondyloarthritis

近年来,强直性脊柱炎(AS)/脊柱关节炎(SpA)临床专家共识或指南不断更新,但如何更好地理解与执行,患者自我参与管理是提高诊疗水平的关键环节之一。通过成立多学科专家和患者共同参与的AS/SpA患者实践指南工作组,开展AS/SpA病友会患者与专家共同参与的AS/SpA患者关注问题的调查,筛选出问题,采用《世界卫生组织指南制订手册》相关原则,按照国际规范流程,提出AS/SpA患者实践指南意见15条。

In recent years,the clinical experts consensuses or guidelines of ankylosing spondylitis(AS)/spondyloarthritis(SpA)have been constantly updated,but to better understand and practice,patient self-participation management is one of the key points to improve the level of diagnosis and treatment.Through questionnaire survey of these patients,we screened out the most concerned issues,and established the AS/SpA patient practice guideline working group with multidisciplinary physicians and patients.Fifteen opinions,as the AS/SpA patient practice guidelines,are proposed in accordance with the relevant principles of the"WHO guidelines development manual",and with the international normative process.