自闭症谱系障碍儿童家长参与课题研究:影响因素和改进策略

A Study on Parental Involvement of Children with Autism Spectrum Disorder:Influencing Factors and Improving Strategies

近年来,人们越来越多地推动自闭症儿童家长有意义地参与科学研究。这种参与式研究能够更好地满足自闭症谱系障碍儿童及其家庭的评估和干预需求。从自闭症儿童自身特征、家庭因素、研究课题本身等方面分析影响家长参与课题研究的因素,基于对影响因素的综合分析,分别从家长及研究者层面提出相关对策建议,以促进家长更积极、更深入地参与课题研究,从而为自闭症儿童的干预提供更多机会。

In recent years,more and more people are promoting the meaningful participation of parents of autistic children in scientific research.This kind of participatory research can better meet the assessment and intervention needs of children with autism spectrum disorders and their families.This paper analyzes the factors influencing parents'participation in the project research from the characteristics of autistic children,family factors and research-related factors,and puts forward relevant countermeasures and suggestions from the level of parents and researchers based on the comprehensive analysis of the influencing factors in order to promote parents to participate in the project research more actively and deeply and provide more opportunities for the intervention of autistic children.