摘要
Objectives:To investigate the focuses and trends of the studies on pediatric palliative care(PPC)and provide directions for future research.Methods:Relevant papers about PPC published from 2004 to 2018 were analyzed using bibliometric analysis methods,including co-word analysis,biclustering analysis,and strategic diagram analysis.The included papers were divided into three groups based on the publication time,including 2004-2008,2009-2013,and 2014-2018.Results:A total of 1132 papers were published between 2004 and 2018,and there were 293 papers published between 2004 and 2008,396 between 2009 and 2013,and 443 between 2014 and 2018.There were 42 high-frequency MeSH terms/MeSH subheadings in papers published between 2004 and 2018,including 12 between 2004 and 2008,13 between 2009 and 2013,and 17 between 2014 and 2018.Conclusion:Studies on PPC were making progress,with the increasing number,expanding scope,and uneven global distribution.Integration palliative care into pediatrics,cancer treatments in pediatric oncology,education methods on PPC,and establishment of professional teams were the major themes during 2004e2008,then the themes changed into establishing interventions to enhance the quality of life of the patients and parents,building professional-family relationship,and investigating attitude of health personnel in PPC during 2009-2013 and subsequently turned into communication skills,end-oflife decision making,and guidelines making on PPC during 2014-2018.Underdeveloped and protential themes including effective approaches to deal with the ethical dilemmas,training programs on communication skills,family support and guideline making are worth studying in the future.
目的分析2004-2018年儿童安宁疗护研究热点及趋势,为儿童安宁疗护的未来研究方向提供参考。方法通过文献计量分析法对2004-2018年儿童安宁疗护相关文献进行共词分析、聚类分析并绘制战略坐标图。按时间顺序分为3个阶段进行分析,即2004-2008年、2009-2013年及2014-2018年。结果共纳入1,132篇文献,其中2004-2008年293篇,2009-2013年396篇,2014-2018年443篇。2004-2018年高频MeSH主题词/副主题词的数量为42个,其中2004-2008年12个,2009-2013年13个,2014-2018年17个。结论2004-2018年儿童安宁疗护领域的文献数量逐渐增加,研究范围不断拓展,仍存在全球发展不平衡的问题。3个阶段的研究热点分别为:2004-2008年的研究主要集中于将安宁疗护融入儿童肿瘤的治疗、儿童安宁疗护的教育及专业团队的构建;2009-2013年的研究重点为提升患儿及父母生活质量的干预方式、建立医务人员与患儿家庭之间的关系以及对医务人员关于儿童安宁疗护态度的调查;2014-2018年的研究则聚焦于医务人员的沟通技巧、患儿临终决策及儿童安宁疗护指南制定。儿童安宁疗护中存在的伦理问题的解决方法、医务工作者沟通技巧的培训课程及指南制定是未来仍需要进一步研究的主题。
