以权利设定为视角探析个人健康数据保护路径

Exploring the Path of Personal Health Data Protection From the Perspective of Rights Setting

大数据时代的背景下,医疗健康大数据的巨大价值逐渐凸显,越来越多的商业场景需要医疗健康大数据作支撑。该研究从隐私权、个人信息权以及数据权学说的角度出发,发现在前述三者体系下未能找到保护个人健康数据的最优解,原因在于个人健康数据的双重属性决定了其需要更为特殊的保护。单纯构建以权利为核心的个人健康数据保护体系并不能解决现实困境,需要从实际出发建立以知情同意原则为核心的多元化的个人健康数据保护路径,并加强个人健康数据的监管,从而不断完善个人健康数据保护体系规范建设。

In the context of the era of big data,the huge value of medical and health big data has gradually become prominent,and more and more business scenarios require the support of medical and health big data.From the perspective of privacy rights,personal information rights,and data rights doctrines,it is found that the optimal solution for protecting personal health data cannot be found under the aforementioned three systems.The reason is that the dual nature of personal health data determines its needs more special protection.Simply building a personal health data protection system with rights as the core cannot solve the real dilemma.It is necessary to establish a diversified personal health data protection path based on the principle of informed consent and strengthen the supervision of personal health data to continuously improve the establishment of a standardized personal health data protection system.