照顾者自我管理支持项目在癫痫青少年主要照顾者中的应用效果

Application effect of the caregiver self-management support project in main caregivers of adolescents with epilepsy

目的:探讨照顾者自我管理支持项目在癫痫青少年主要照顾者中的应用效果。方法:采用便利抽样法,将2019年1—8月郑州大学第一附属医院照顾者自我管理支持项目推行前入组的癫痫青少年主要照顾者纳入对照组(n=101),采用常规随访;将2019年9月—2020年6月项目推行后入组的癫痫青少年主要照顾者纳入研究组(n=101)。干预前后,采用心理弹性量表(CD-RISC)、简易应对方式量表(SCSQ)、照顾者负担(ZBI)、生活满意度指数A(LSIA)和医疗社会支持量表(MOS-SSS)比较两组照顾者的心理韧性、应对方式、生活质量和社会支持情况。最终研究组共98名照顾者、对照组共97名照顾者完成研究。结果:研究组主要照顾者干预后的CD-RISC各维度得分、SCSQ的积极应对得分、LSIA得分、MOS-SSS各维度得分均高于对照组,SCSQ的消极应对得分、ZBI得分低于对照组,差异均有统计学意义(P<0.05)。结论:照顾者自我管理支持项目有助于增强癫痫青少年主要照顾者的心理韧性,提升其积极应对方式与社会支持,改善其生活质量。

Objective To explore the application effect of the caregiver self-management support project in main caregivers of adolescents with epilepsy.Methods Using the convenient sampling method,the main caregivers of adolescents with epilepsy who were enrolled before implementation of the caregiver self-management support project of the First Affiliated Hospital of Zhengzhou University from January to August 2019 were included in the control group(n=101),and they were given routine follow-up.The main caregivers of adolescents with epilepsy who were enrolled after the implementation of the project from September 2019 to June 2020 were included in the study group(n=101).Before and after the intervention,the Connor-Davidson Resilience Scale(CD-RISC),Simplified Coping Style Questionnaire(SCSQ),Zarit Burden Interview(ZBI),Life Satisfaction Index A(LSIA)and Medical Outcome Study Social Support Survey(MOS-SSS)were used to compare the psychological resilience,coping style,quality of life and social support of caregivers between the two groups.Finally,a total of 98 caregivers in the study group and 97 caregivers in the control group completed the study.Results After the intervention,the scores of dimensions of CD-RISC,positive coping score of SCSQ,LSIA score and dimensions scores of MOS-SSS of main caregivers in the study group were higher than those in the control group,while the scores of negative coping of SCSQ and ZBI were lower than those in the control group,and the differences were statistically significant(P<0.05).Conclusions The caregiver self-management support project helps to strengthen the psychological resilience of the main caregivers of adolescents with epilepsy,enhance their active coping style and social support and improve their quality of life.