健康医疗大数据公平问题研究

Research on Equity Issues of Biomedical Big Data

健康医疗大数据指代当前出现的技术驱动分析大数据集,从而增加医疗知识,提高治疗水平的现象。在健康医疗大数据时代需要建立健康医疗大数据各伦理主体都能接受的价值体系。健康医疗大数据面临的公平问题,已经由小数据时代风险的公正分配转向机遇(受益)的公正分配。因而,在个体权利和共同善的权衡中,公共健康发展的共同利益具有优势地位,但同时也要注重个体隐私权、知情同意权的保护;共识的制定需要克服不同社会群体之间的差异和分歧,进行理性的互动,在价值和观念层面达到一致;对于发展中国家来说,应当积极参与发达国际的合作。通过合作提升技术水平,培养技术人才。

Biomedical big data refers to the phenomenon of technology-driven analysis of large data sets,which increases medical knowledge and improves treatment level.In the era of big data,it is necessary to establish a value system acceptable to all ethical subjects.Equity issues of biomedical big data has shifted from fair distribution of risk to fair distribution of opportunities (benefits).Therefore,in the balance of individual rights and common good,the common interests of public healthy development have a dominant position,but at the same time we should pay attention to the protection of individual privacy;consensus-making needs to overcome differences among different social groups,conduct rational interaction,and achieve consistency in value and concept.Developing countries should actively participate in international cooperation,through which could upgrade technical level and train technical talents.