慢性肾脏病病人健康素养水平与生活质量、疾病进展恐惧的调查分析

Investigation and analysis of health literacy level,quality of life,and fear of disease progression of patients with chronic kidney disease

目的:评估慢性肾脏病(CKD)病人健康素养水平与生活质量、疾病进展恐惧现状并对其关系进行分析。方法:选取136例慢性肾脏病病人作为研究对象,应用健康素养量表、恐惧疾病进展简化量表及慢性肾脏病生活质量量表对其进行调查。结果:CKD病人健康素养得分为(89.33±19.35)分,低健康素养水平的CKD病人共82例占60.3%,且不同职业状态的CKD病人健康素养得分比较差异有统计学意义(P<0.05)。恐惧疾病进展、肾病相关生活质量与健康素养呈负相关(r=-0.580,r=-0.473,P<0.01),一般健康相关生活质量与健康素养呈正相关(r=0.412,P<0.01)。结论:医护人员应结合动画、视频等形式为病人提供针对性的信息支持、增强沟通能力,以提升其健康素养水平,继而减轻病人恐惧疾病进展的负性情绪,改善其生活质量。

Objective:To evaluate the health literacy level,the quality of life(QOL),and the fear of disease progression of patients with chronic kidney disease(CKD)and analyze the relationship between them.Methods:A total of 136 CKD patients were selected and investigated using the Health Literacy Scale,Fear of Progression Questionnaire-Short Form(FoP-Q-SF),and the Chronic Kidney Disease Quality of Life Scale.Results:The health literacy score of CKD patients was(89.33±19.35).A total of 82 CKD patients with low health literacy level accounted for 60.3%of all patients.There was statistically significant difference in health literacy scores of CKD patients with different occupational statuses(P<0.05).Fear of disease progression and kidney disease-related QOL were negatively correlated with health literacy(r=-0.580,r=-0.473,P<0.01).General health-related QOL was positively correlated with health literacy(r=0.412,P<0.01).Conclusions:Medical staff should provide the targeted information support forpatients and enhance communication skillscombined with animation,video,and other forms,so as to improve their health literacy level,then reduce the patient′s negative emotions about fear ofdisease progression and improve their quality of life.