《大骨节病治疗效果判定》(WS/T 79-2011)标准应用情况调查

An investigation on application of the standard of"Assessment for Therapeutic Efficacy on Kashin-Beck Disease"(WS/T 79-2011)

目的评价《大骨节病治疗效果判定》(WS/T 79-2011)标准(简称新标准)在病区的应用情况及实施过程中存在的问题,为进一步完善该标准提供技术依据和建议。方法2019年对四川省、陕西省、青海省、甘肃省、西藏自治区共5个省份的大骨节病防治技术人员基本情况,新标准执行、宣传、培训及关节功能障碍指数评分方法应用情况等进行问卷调查和分析。结果本次调查共发放问卷134份,回收有效问卷132份,其中88.64%(117/132)大骨节病防治技术人员接受过新标准的培训,89.39%(118/132)使用过新标准;78.03%(103/132)认为术语清晰,容易掌握;71.97%(95/132)认为简单方便,易于操作;49.24%(65/132)认为标准评价结果与患者实际改善情况一致,50.75%(67/132)认为大体一致;72.73%(96/132)认为设计科学合理,可行性强。大骨节病防治技术人员应用关节功能障碍指数评分方法时,"关节休息痛""关节运动痛""晨僵""最大步行距离"和"四肢活动能力"5个指标术语,90%以上防治技术人员容易理解且容易提问;大骨节病患者接受调查时认为5个指标术语容易理解的构成比分别为96.21%(127/132)、83.33%(110/132)、90.15%(119/132)、78.79%(104/132)和90.15%(119/132),容易回答的构成比分别为95.45%(126/132)、83.33%(110/132)、89.39%(118/132)、75.00%(99/132)和89.39%(118/132)。结论新标准术语清晰、设计科学合理、操作方便、可行性强,评价结果与患者实际改善情况基本一致;建议关节功能障碍指数评分方法增加客观评价指标。

Objective To investigate the application and problems existing in the implementation of the standard of"Assessment for Therapeutic Efficacy of Kashin-Beck Disease"(WS/T 79-2011,referred to as new standard),and to provide technical basis and suggestions for further improving the standard.Methods In 2019,a questionnaire survey was conducted and analyzed in Sichuan,Shaanxi,Qinghai and Gansu provinces and Tibet Autonomous Region on basic information,standard implementation,publicity,training and application of scoring method of joint dysfunction index of Kashin-Beck disease prevention and control technicians.Results One hundred and thirty-four questionnaires were distributed in this survey and 132 valid questionnaires were recovered,of which 88.64%(117/132)of Kashin-Beck disease prevention and control technicians received training in the new standard and 89.39%(118/132)used the new standard;78.03%(103/132)thought that the standard terms were clear and easy to master;71.97%(95/132)thought it was simple,convenient and easy to operate;49.24%(65/132)thought that the standard evaluation results were consistent with the actual improvement of patients,and 50.75%(67/132)thought that it was generally consistent;72.73%(96/132)thought that the design was scientific,reasonable and feasible.When using the scoring method of joint dysfunction index,more than 90%of the technicians thought that the five index terms of"joint rest pain","joint movement pain","morning stiffness","maximum walking distance"and"limb activity ability"were easy to understand and ask questions.When patients with Kashin-Beck disease were investigated,the constituent ratios of easy to understand the five index terms were 96.21%(127/132),83.33%(110/132),90.15%(119/132),78.79%(104/132),90.15%(119/132)and the constituent ratios of easy to answer were 95.45%(126/132),83.33%(110/132),89.39%(118/132),75.00%(99/132)and 89.39%(118/132),respectively.Conclusions The new standard terms are clear,the design is scientific and reasonable,the operation is convenient and the feasibility is strong.The evaluation results are basically consistent with the actual improvement of patients.It is suggested to add objective evaluation indexes to the scoring method of joint dysfunction index.