6例MDA5抗体阳性皮肌炎相关快速进展间质性肺病患者的护理体会

Nursing Experience of 6 Patients with MDA5 Antibody-Positive Dermatomyositis Related Rapidly Progressing Interstitial Lung Disease

目的总结MDA5抗体阳性皮肌炎相关快速进展间质性肺病(RP-ILD)患者的护理经验。方法6例MDA5抗体阳性皮肌炎相关快速进展间质性肺病患者的护理重点包括呼吸系统的护理、皮肤的护理、吞咽指导及护理、抗凝的护理、控制感染的护理、舒适的护理。结果4例患者病情稳定后给予治疗方案出院,2例因出现呼吸衰竭经抢救无效后死亡。结论对于MDA5抗体阳性的皮肌炎患者合并RP-ILD时,应该控制感染,控制纤维化进展,做到减轻患者氧耗,控制患者感染侵袭,增强患者对抗疾病的信心,对患者进行包括疾病、心理、营养多维度的护理,基于以上护理原则对此6例患者进行相关护理以帮助患者从疾病快速进展期向平稳期过渡并总结护理体会,旨在更好地为临床护理工作作出参考。

Objective To summarize the nursing experience of patients with rapidly progressing interstitial lung disease(RP-ILD)related to MDA5 antibody-positive dermatomyositis.Methods The focus of nursing care of 6 patients with MDA5 antibody-positive dermatomyositis-related rapidly progressing interstitial lung disease included respiratory system care,skin care,swallowing instruction and care,anticoagulation care,infection control care,and comfortable care.Results 4 patients were treated with treatment after their condition was stable and discharged,2 patients died of respiratory failure after rescue failure.Conclusion For patients with MDA5 antibody-positive dermatomyositis and RP-ILD,the infection should be controlled,the progression of fibrosis should be controlled,so as to reduce the patient's oxygen consumption,control the patient's infection invasion,enhance the patient's confidence in fighting the disease,and treat the patient including the disease,Psychological and nutritional multi-dimensional nursing,based on the above nursing principles,the 6 patients were given relevant nursing care to help the patients transition from the rapid progress of the disease to the stable period and summarize the nursing experience,aiming to make a better reference for clinical nursing work.