脊髓性肌萎缩症患儿行多学科协作的护理

Application of multidisciplinary collaboration in the care of children with spinal muscular dystrophy

总结5例脊髓性肌萎缩症患儿行多学科协作护理的体会。护理要点:以小儿内科脊髓性肌萎缩症患儿的责任护士为主导,与本科室的神经、呼吸、康复、营养医疗专业组的专职护士协作,同时邀请营养科、康复科医师共同对患儿实施呼吸道管理、鞘内注射诺西那生钠注射液的护理、胃造瘘营养管理、家庭救护技能培训及康复训练、出院随访及延伸服务。5例患儿治疗效果良好,顺利出院。

To summarize the nursing experience of multidisciplinary cooperation in 5 children with spinal muscular atrophy.Under the leadership of charge nurses for pediatric patients with spinal muscular dystrophy,cooperation of full-time nurses who are matched with medical professional groups of neurology,respiratory,rehabilitation and nutrition departments,and the participation of doctors of nutrition department and rehabilitation department,the respiratory tract management,nursing care of intrathecal injection of Nosephase sodium,nutrition management of gastrostomy,home rescue skills training and rehabilitation training,discharge follow-up were carried out for the children.Five children were successfully discharged from hospital with good treatment effect.